LIVING with SPINA BIFIDA

Living with spina bifida involves a process of discovery

and planning regarding (1) how the individual's holistic

health and functioning can be affected throughout the

lifespan and (2) the supports that can help to maximize

their quality of life and independence. The following

resources address a spectrum of relevant issues.

International Federation for Spina Bifida & Hydrocephalus

Being Pregnant with a Child with Spina Bifida

Portraits: Living with Spina Bifida & Hydrocephalus

SBA National Office

Living with Spina Bifida

Spina Bifida Overview

Frequently Asked Questions About Spina Bifida

SBA Publications List

National Resource Center

SBATSR Supports

Health/Medical

Education

Community Living

Personal Health Promotion

TEAM Mentoring Program

Assistive Technology

Family Support Program

TeleCommunity

Newsletters

Resources

Advocacy Center

Events

Wellness

6 Dimensions of Wellness

Power Point Presentation Summary

1.  Physical

2.  Social

3.  Emotional

4.  Intellectual

5.  Spiritual

6.  Occupational

Abuse Prevention & Empowerment

"Dealing Firsthand with a Birth Defect"

By Danielle Wright

LD  Family Support

Families/Fathers/Siblings Articles

 

                                

 

 

 

 

 

 

 

Bronx Adults with SB

In-Person Support Group Meeting

Date to be Announced

Location: Kenndy Center

Building Three/Jacobi Campus

1410 Pelham Pkwy South, Bronx

For information contact Lourdes

646-404-0864 or

lefty2525@aol.com

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Coping for Kids

Things That Help Me

Learning Problems

Being Afraid

Why Am I So Sad?

Dealing with Anger

5 Steps to Fighting Stress

Organize, Focus, Get it Done!

If You Don't Like School

Nervous About Tests

Going to a Therapist

About Wheelchairs

About Self-Esteem

About Worrying

Feelings Complete Series

How to use 911

Caregiver Support

Cargiver Self-Assessment

10 Tips for Family Caregivers

Learn How to Relax

Caregiver NJ

Sibling Support

Siblings Overview

Parent Guide: Sibling Issues

The SB Sibling Experience

Sibling Support Project

LDs & Sibling Issues

 

 

 

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