H E A L T H / M E D I C A L
Advances in medical science and health care access have revolutionized the possibilities for people living with spina bifida. The shunt increased longevity. Innovations in testing, procedures and medications promote earlier detection, treatment and healing. Research evolves toward answers.
One unchanging need for people affected by spina bifida is a thorough understanding of the condition, possible secondary conditions and proactive health care practices. Another is forming a relationship with a spina bifida care coordination center, when available, in addition to a primary care provider. Secondary conditions require monitoring by a range of specialists in order to maintain optimum health
and functioning. Good health is built on good habits.
Spina Bifida Overview
About Spina Bifida
Spina Bifida Overview
Spina Bifida Overview for Kids
Frequently Asked Questions
SBA Publications List
SBA National Resource Center
Possible Secondary Conditions
Growing up with Spina Bifida
Adult Spina Bifida Issues
Adults Issues & Spina Bifida
A Parent's Perspective: LDs & Dating
Arnold Chiari Malformation
Overview of Symptomatic Chiari Malformation
National Institute of Neurological Disorders
World Arnold Chiari Malformation Association
Pain Management in Chiari Malformation (Video)
(Scroll to bottom link to play video)
The Chiari Institute
Continence Issues
Urologic Care & Management
Continence Management & Spina Bifida
Urinary Continence/Bowel Control for Children
Toilet Training the Child with Spina Bifida
Young Adult Continence Manual
Continence Management Checklist
Continence Planner
Hydrocephalus
Hydrocephalus & Shunts
Symptoms of Shunt Malfunction
National Institute of Neurological Disorders
Hydrocephalus Association
Latex Allergy
SBA 2007 Latex List
Overview of Latex Allergy in Spina Bifida
American Latex Allergy Association
Learning Disabilities
Are There LDs with Spina Bifida?
Education & Spina Bifida
Mental Health/Spirituality
Depression & Anxiety in Spina Bifida
Child's Responses to Illness, Injury, Health Care
Taking your Child to a Therapist
Attitude is Key in Quality of Life
Spirituality & the Lives of People with LDs
Spirituality& Learning Disabilities
Religious Expression & Learning Disabilities
Prayer & Spirituality in Health
Mind-Body Medicine: An Overview
Alternative Approaches to Mental Health
Learn How to Relax
Relaxation Exercise
Obesity
Overview of Obesity in Spina Bifida
Physical Activity Guidelines for SB
Exercise for Teens with SB Video
Oral Health Problems
Dental Care Every Day: A Caregiver's Guide
Six Steps to a Safe Wheelchair Transfer
Oral Health/Special Health Care Needs
Finding Low Cost Dental Care
Donated Dental Services
Orthopedics
Pediatric Orthopedics
Overview of Hip Function & Ambulation
Mobility of Aging Person with SB
National Scoliosis Foundation
Pain
Let's Talk About... Child Pain Management
Let's Talk About... Surgical Pain & Comfort
American Chronic Pain Association
American Academy of Pain Management
Pain Management in Chiari Malformation (Video)
(Scroll to bottom link to play video)
Pain Relaxation Exercise
Sensory Processing Disorder
SPD Symptoms & Behaviors
Sexuality
Overview of Precocious Puberty
Dating & Sexuality
Sex & Spina Bifida (from Young Adult Manual-
by Continence Management & Spina Bifida)
Skin Breakdown
Prevention of Pressure Sores
Tethering Spinal Cord
Overview of Tethering Spinal Cord
Neurosurgery Today
Transition Issues
Overview of Transitions in Adolescence
Transitioning Urologic Care
Adult Health Care Transition Guide
Adolescent Health Transition Project
Vision Problems
Ophthalmic Complications of Meningomyelocele
Strabismus Associated with Meningomyelocele
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Complementary/Alternative Medicine
National Institutes of Health - CCAM
NIH-CCAM Health Information
Prayer & Spirituality in Health
Mind-Body Medicine:An Overview
NIH-CCAM Online Video Courses
Alternative Approaches to Mental Health
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